Tip Center

Number of side effects reported

20

Number of diseases reported

49

Latest News

GIST and its treatment can cause a variety of symptoms. Adequate management of symptoms can improve a patient’s quality of life. Proper management can also allow the patient to remain on treatment without a decrease in dosage, interruption of treatment, or even the discontinuation of treatment. Staying on treatment as prescribed gives patients the best chance of a good outcome and in some cases has been shown to improve survival rates.

 

In this webcast, Dr. Lori Williams, Associate Professor in the Department of Symptom Research at MD Anderson Cancer Center, will review common symptoms associated with GIST and some of its treatments. She will present methods patients can use to self-manage symptoms as well as how to discuss and when to report symptoms to health care providers. 

 

Pete Knox, Senior Director of Research at The LIfe Raft Group, will also share an update on our interactive side effects management platform, SideEQ. This platform is a great tool to allow patients to optimize their overall health by learning and sharing tips with others on how to manage side effects.

 

There will be a 15 minute Q & A at the end of the presentation.

 

REGISTER: https://cc.readytalk.com/registration/#/?meeting=ugl3l6pdobvq&campaign=j7tm5oljbx36

Changes at SideEQ
06 June 2018 by admin

You may have noticed a few changes on our site - this was done in an effort to make SideEQ even easier to use. While a lot of the changes were "behind the scenes", here's a few that you'll definitely notice:

  • We've made viewing side effects even easier - Logging on to the site now defaults you to our "Side Effects Hub", where you see all of our side effects listed, and can jump straight to individual ones to see tips and questions or post your own. Don't worry - the previous "Hub" is still there - it is now called the "Tip Center" and can be accessed from the top menu.
  • We've made rating side effects even easier -  simply click on the "Rate Side Effects" button on the top menu, which will launch a pop-up window. You can do this from anywhere on the site.
  • We added a question about which side effect concerns you the most - this was done to better understand the patient experience, because we found out that while frequency and severity are important factors, there are other issues that impact side effects and quality of life as well that can lead patients to prioritize their side effects differently.  

There are more changes to come (we're always trying to make SideEQ even better), and we'll be sure to notify you as they happen! 

We'd love to know what you think of these changes - just send an email to contactus@mysideeq.org.

Are you a patient or caregiver who struggles with low energy, or is confused about how nutrition and exercise may be able to help you deal with your disease and its side effects?

Some medical conditions mean that even when a person makes good diet and lifestyle choices, achieving good nutritional health and increasing energy remains challenging.

Listen now to an informative webcast from Dr. Nikhil Guhagarkar MDS, who will address this topic from a patient's perspective.

Dr. Guhagarkar is an Oral and Maxillofacial Surgeon based in Mumbai, India, and is also a GIST (Gastrointestinal Stromal Tumor) patient. He has spent the last few years as a patient advocate, and has also authored the educational booklet "A Guide to Nutrition and Holistic way of Living with GIST". He will be discussing how to use a holistic approach that incorporates nutrition and exercise (including yoga and meditation) to achieve higher energy levels and help you live better with your disease.  

While Dr. Guhagarkar is a GIST patient, this webcast would benefit anyone who struggles with these issues, regardless of the disease they have. We believe that patients and caregivers sharing their experiences plays an important part in helping fellow patients achieve quality of life.

 

After watching the webcast, join Nikhil and others to talk about nutrition and share tips on side effects management right here on SideEQ!!!

 

 

  Take Our Poll - Have your side effects gotten better over time?

*Only patients and caregivers are allowed to vote in polls

A- Yes
48 % 
B- No
43 % 
C - I'm not sure
9 %